It’s hard to update when things are hard and I typically don’t go there on here.
Pierce started two new meds. For about a week we all saw glimpses of the old Pierce, before the seizures started. This week, though, has been really hard. I don’t know what the next thing is. He has an MRI on Monday to look for why he seizes and Blaine and I will have blood draws alongside Pierce for genetic testing. We’re looking to see if he has a specific cause or syndrome and if this is genetic. We have to travel to St Louis for this. Pierce is incredibly pale and super struggling and we don’t know why. Blood tests showed little. Seizures continue nightly, though he’s had no more daytime ones for about a month.
Creed learned to pedal a 2-wheeled bike! He’s been on a pedal-less bike for a year, and this spring announced he wanted a regular bike. His brother fixed up an old 12” bike and he was off and gone the moment he hit pavement at the park. I found a better bike on marketplace since the old one was puncturing tubes with rusty rims and he’s over the moon. He’s told everyone he sees about that new orange bike. He’s getting the hang of brakes still but balance and pedaling he’s got figured out. The balance bike at two years old to a bike when they’re ready without ever using training wheels is the way to go. Both Stellan and now Creed have been on balance bikes at two and ridden regular bikes at three years old. Stellan was fearless about much and Creed is very much NOT fearless so I expected him to wait longer but he’s determined.
I only got video of the bike so I can’t easily post that but I do have this lovely image of Creed finishing off every pork rib bone he could beg for off everyone’s plate when they THOUGHT it was clean and clean off further. Creed really really likes ribs.
Stellan turned eight ant the end of January and I don’t even have birthday photos in my phone. I know someone took some, but apparently it wasn’t me. He’s quite happy with his new Wranglers and a fancy yo-yo.
Eden turned 19 the first of February and spent her first birthday away from us. Work schedules wouldn’t work out to celebrate together. She’s due in May with Cordell Atticus and getting a tiny little belly finally. I’ve been thrifting to get her a few things for baby. It’s fun to shop for tiny things again.
Ruby got her driver’s permit! Teaching kids to drive is about my least favorite thing ever, but she should be a pretty easy one in the scheme of things. Ruby’s cautious and teachable.
Our homeschool co-op started again after a long break and I’m teaching sewing again. My class had a waitlist, so they must have had fun last semester. I learned some things on how to do things better and this first week at least went very well.
I began intermittent fasting and have been able to lose a bit of weight. I have a way to go yet but it’s good to see it working. I joined a group of women on Facebook that compete for cash and track weight each week. Contributing to the pot was optional and I chose not to because I couldn’t decide that it didn’t bother my conscience as gambling but I’m constantly back and forth between first and second place for highest percentage of weight lost each week. I’m at 6% lost in a month. That’s been encouraging.
Overall, lots of good and lots of hard and it’s hard to sort between the two. I’m weary and disheartened at what I’d always held as our standard and where we are now. We doctor little, medicate minimally, and homeschool always and I called a public school last week to see what help they might offer. We’re not in the district I work for but I’d hoped they would still help but they cannot. I haven’t brought myself to call the big school we’re in the district for. Pierce takes four meds and they don’t seem to help, but maybe it would be so much worse without them. But maybe I’d just have my son back, without the fog he lives in.