We are home from the hospital, as of yesterday afternoon. Pierce had a 30 second seizure Tuesday night at 8pm, but was woken up out of it. It’s so odd, but the neurologist said it’s a variation of normal to be able to get him to stop seizing. We have daily and rescue meds. We don’t have a diagnosis beyond seizure disorder with focal seizures. He’s 37 hours seizure free as of now.
I’m twitchy. Waiting for another seizure, I’m nervous about all of his movements. Going to take a while to calm down. I’m the opposite of a helicopter mom, so this is hard. Blaine rolled over in his sleep and I woke up with a start. Pierce wasn’t even in the room. Pierce slept next to Eden last night and she felt him starting to shake and started to rouse him out of it and he annoyingly told her he was just shivering and just fine, only cold. Poor kid. We’re all waiting for the next seizure, scared.
Pierce has had two strange sleepwalking episodes. He’s always done it, but this is more frequent and kind of strange. One was in the hospital Tuesday night not long after his last seizure, and one was during a nap Wednesday after we got home. Med side effects don’t list this, but I’m suspicious nonetheless.
Beyond praying for no more seizures, would you pray we can rest in the knowledge that God loves Pierce more than we do, that we can pack and move without further issues, and that we can find a home and new doctors quickly? This has been a scary, stressful, exhausting week.
What an ordeal for all of you. the not knowing what is causing this would be an emotional roller coaster. So glad you all were not on the road headed back when this happened. At least you had your parents for support.
We are PRAYING for you all. Nothing takes GOD by surprise.