In my last post, I mentioned Pierce approaching admission to the hospital to begin a ketogenic diet. It didn’t happen. Four days before admission, the doc’s nurse called and expressed concerns. Nothing that was new was mentioned. All the reasons she gave existed when they approved us for the diet. But they didn’t want to begin. They didn’t force us to cancel, but they strongly advised we not do this now. So… we wait. Maybe someday. Not now.
I’m really frustrated. I understand their reasons, but I’m confused why they didn’t voice those when we first discussed this, and not after I rearranged our week to be able to leave and have childcare and work covered. Before we got our hopes up.
We had a good couple weeks towards the end of summer. We had several sets of friends visit, ate marshmallows, Liberty came to visit, and we went to the St Louis zoo. We’re still enjoying… or surviving , maybe… hot temps here and amazed summer is about over.
Now, I’m back to driving a school bus route, at least for the next month or so until my replacement heals from surgery. I’m working a bookkeeping job from home. I chopped my hair off. I think I like it. We started our homeschool again last week. Ruby will turn 16 and Lachlan will be 3 next week. The house remodel chugs along, sometimes faster, sometimes not, toward being done and ready to sell. That’s dragged out so long. We’re not doing a co-op this fall in hopes that we move before the end of the semester.
Lots of hard days. Lots of good days. Doing the next thing, always.
Charlotte Moore says
I have been wondering about Pierce and his condition. I know it has to be frustrating when Drs. change things. Pray he will just out grow it.
Trust you all find a place to live soon . At least you do have a good place until you do.
GOD BLESS!